Projektart: Verbundprojekt Gefördertes Projekt Studie
Beschreibung / Inhalte
Hintergrund:
Die Epilepsie ist eine der häufigsten chronischen neurologischen Erkrankungen. Seit Einführung der operativen Option in der Behandlung der Epilepsien wird postoperative Anfallsfreiheit als entscheidendes Kriterium für den Behandlungserfolg definiert. Trotzdem bleiben psychosoziale Probleme bestehen, welche von den Betroffenen trotz Anfallsfreiheit als gravierendste Einschränkung erlebt werden.
Ziele und Fragestellungen:
Ziel der Studie ist die Erfassung des Bedarfes für eine Rehabilitationsbehandlung nach epilepsiechirurgischem Eingriff aus Sicht der Patienten ("need") und der Therapeuten ("demand"). Zusätzlich sollen Entscheidungskriterien für eine Rehabilitation definiert werden und im Rahmen einer katamnestischen Nachbetrachtung die Indikationsstellungen zur erfolgten bzw. nicht erfolgten Behandlung auf ihre Korrektheit überprüft werden.
Studiendesign:
Bei jährlich etwa 100 epilepsiechirurgischen Eingriffen am Epilepsiezentrum Freiburg- Kork, werden in einem Untersuchungszeitraum von 1,5 Jahren etwa 120 Patienten einbezogen werden können.
Messzeitpunkte:
t0 = präoperativ;
t2 = postoperativ (1 Woche);
t3 = 3 Monate nach Operation.
Evaluationsmaße sind der SCL- 90R, QUOLIE31, IRES-3, PAREMO, DCS, VLMT,D2 sowie soziodemographisch relevante Variablen.
Forschungsverbund Freiburg
t2 = postoperativ (1 Woche);
t3 = 3 Monate nach Operation.
Evaluationsmaße sind der SCL- 90R, QUOLIE31, IRES-3, PAREMO, DCS, VLMT,D2 sowie soziodemographisch relevante Variablen.
Forschungsverbund Freiburg
Projektbeschreibung von Projektverantwortlichen übernommen.
Beginn:
01.01.2002
Abschluss:
31.12.2003
Kostenträger:
- Bundesministerium für Bildung und Forschung (BMBF)
- Deutsches Zentrum für Luft- und Raumfahrt e. V. - DLR Projektträger des BMBF
- Deutsche Rentenversicherung Bund
Projektleitung:
- Hammen, Axel, Dr. |
- Wohlfarth, Rainer, Dipl.-Psych.
Institutionen:
Rehabilitationswissenschaftlicher Forschungsverbund Freiburg/Bad Säckingen
Kontaktadresse:
Dr. A. Hammen
Klinikum für Akut- und Rehabilitationsmedizin,
Schwarzwaldklinik-Neurologie
Im Sinnighofen 17
79189 Bad Krozingen
Hammen, A., Wohlfarth, R., Kolander, D., Schulze- Bonhage, A., Reinshagen, G. Rehabilitation nach epilepsiechirurgischem Eingriff. Epilepsie-Blätter 13 (2000)
Need for Rehabilitation after surgery in epilepsy
Epilepsy is one of the most common neurological illnesses. The epileptic patient's quality of life includes psychological deficits, behavioural disorders, psychiatric complications and social problems.
The surgical goal in epilepsy treatment aims to free the patient of seizures. Successful surgeries improve the patient's life situation and social integration because of eliminated restrictions. It is generally known that psychological problems persist in up to 50% of cases. The problems are self-rated as the most serious limitation in the patient's life. As a result, the current need for specific assistance is undisputed. However, because detailed studies investigating these issues are lacking, it is not known which treatment options are necessary.
Questions:
1) Recognise and consider the specific complex problems of the affected patients.
2) Characteristics which objectively describe patients needing post-operative rehabilitation.
3) Which physical, emotional, cognitive or social factors identify patients requesting rehabilitation versus those who do not want it?
4) Ask by catamnestic questioning, whether the current assessment of demand and need for post-operative rehabilitation is correct?
Study design:
The investigation consists of a survey administered at three time points. Registration of need and demand for rehabilitation following epilepsy surgery will be conducted at the Freiburg-Kork center for epilepsy in Germany.
Survey administered time points are fixed at:
- T0 = pre-operation
- T1 = 1 week post-operative
- T2 = 3 month follow-up
Implications for clinical practice:
The project is the first study to collect data that evaluates the need and demand for post-operative epilepsy rehabilitation. We expect to obtain predictors that define which patients will need post-operative rehabilitation. The data will provide indicators that can help to outline and develop post-operative rehabilitation treatment recommendations.
Additionally, concepts for this specialised rehabilitation can be adapted to the functional health of these patients that correspond to the ICF-classification of the World Health Organisation.
The surgical goal in epilepsy treatment aims to free the patient of seizures. Successful surgeries improve the patient's life situation and social integration because of eliminated restrictions. It is generally known that psychological problems persist in up to 50% of cases. The problems are self-rated as the most serious limitation in the patient's life. As a result, the current need for specific assistance is undisputed. However, because detailed studies investigating these issues are lacking, it is not known which treatment options are necessary.
Questions:
1) Recognise and consider the specific complex problems of the affected patients.
2) Characteristics which objectively describe patients needing post-operative rehabilitation.
3) Which physical, emotional, cognitive or social factors identify patients requesting rehabilitation versus those who do not want it?
4) Ask by catamnestic questioning, whether the current assessment of demand and need for post-operative rehabilitation is correct?
Study design:
The investigation consists of a survey administered at three time points. Registration of need and demand for rehabilitation following epilepsy surgery will be conducted at the Freiburg-Kork center for epilepsy in Germany.
Survey administered time points are fixed at:
- T0 = pre-operation
- T1 = 1 week post-operative
- T2 = 3 month follow-up
Implications for clinical practice:
The project is the first study to collect data that evaluates the need and demand for post-operative epilepsy rehabilitation. We expect to obtain predictors that define which patients will need post-operative rehabilitation. The data will provide indicators that can help to outline and develop post-operative rehabilitation treatment recommendations.
Additionally, concepts for this specialised rehabilitation can be adapted to the functional health of these patients that correspond to the ICF-classification of the World Health Organisation.
Referenznummer:
R/FOFVB3D6
Informationsstand: 14.06.2018